Name: 誤解されていませんか...？// PACEとは？// 医療スキャンダル[CC] (Have you been misled...? // What is PACE? // Medical Scandal [CC])
Uploaded: 2021-01-14T10:50:39.000Z
Duration: 19 min 46 s
Description: VoiceTubeの動画で発音を聞きながら英語表現を覚えよう！学べる英語：

Don't worry about my wrist splints, though; that's just because I flattened my hair

and I'm apparently such a delicate little flower that

that then requires the help of wrist splints.

Since I'm floorbound today, it'll be working from the floor.

some more disability/illness-related stuff.

I do have a playlist for all of my disability-related videos, by the way.

If you want to see that, that's up above in the card.

I thought that I would talk to you about PACE.

it's basically the worst thing to ever happen to the ME/Chronic Fatigue Syndrome community.

And I talked then about how I was diagnosed

is a very controversial and poorly understood disease.

Worldwide, it's estimated that it affects 30 million people.

People with ME experience a dramatic decrease in their stamina

for ordinary physical and cognitive activities.

There's a characteristic dramatic increase in symptoms

after minimal physical or cognitive exertion.

and cognitive dysfunction, as well as pain and fatigue.

Most people with ME cannot work and 25% are confined to their beds

I am just above that group, in that I am not always confined to my house.

Basically, I have different doctors who say different things.

They only care about their own speciality.

Anyway, when I was seventeen, I was diagnosed with ME.

Though I had various other medical issues going on at the time

even though the symptoms overlapped with other symptoms

I was then added to the list at the ME Clinic in Bristol

and, as part of that, I had to go to various "therapy"

where I would go and talk to someone; they would ask me about my levels of energy;

I had to colour in how much energy I had used

Filling in the chart took quite a bit of energy, to be fair.

And the intention was, after I had filled in this chart for quite a while,

I would then begin a process of steadily increasing my exercise

could not really move for about three hours.

I just had to lie there while my body used its precious energy resources

until I then had to go through the process again.

Most people who are diagnosed with ME/CFS

(yeah, the name - there's some controversy, that's why it's called ME/CFS)

(Yeah, go back to my Chronic Fatigue video - that will tell you all about that)

Most people who have been diagnosed with ME or CFS

will have been told two things by their doctor:

and number two: that they should go and see a psychotherapist.

So, number one I already told about: I had to do some graded exercise and I

although that didn't really get me anywhere.

The whole idea that ME or any of the things that I've been diagnosed with

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誤解されていませんか...？// PACEとは？// 医療スキャンダル[CC] (Have you been misled...? // What is PACE? // Medical Scandal [CC])

cognitive

chronic

fatigue

physical