字幕表 動画を再生する
okay we're about to go in and wake up Ruby. happy Valentine's Day happy
Valentine's Day Jesus guess what I mean
are you excited
Oh bully I'm making her a firt pancake this morning I thought it would be fun
to surprise her except it's Valentine's Day we'll see if it turns out
what is he doing when I put your hair up okay just video of you I'm gonna follow
you around today is that okay yeah like a heart
well mornings are pretty uh they go pretty fast so I love her brush her
teeth well I brush her hair and put it in a
little ponytail and then when she's done when I'm done with this I'll go finish
up the brush in right make sure you get those teeth nice and clean
excited yeah no any pushy you're going to be ready today yeah that's nice okay
forefront a breeze in a wheelchair and Ruby likes to help push her down the
halls
welcome to a day in the life s bsk original series that follows individuals
living with a diagnosis for an entire day to show that every human on this
earth has value purpose and is capable of progress we were given the
opportunity so without further hesitation get ready for a day in the
life hey Ruby are you ready for your question you want me to call you Ruby
Ruby it's good to see you again Ruby now your first question is where are we at
school do you like it here yeah what's your favorite part of school really
cookies
I think it helps both of them definitely being able to push Avery is special and
then also for Ruby to kind of use the wheelchair as a guide for her kind of
works for both of them what's your favorite thing about Avery oh it's super
sweet I think we had told Ruby that Avery was going to join our school it
was just last May that she came here she moved here with her family and so kind
of the lead-up to Avery coming was really exciting for her to have another
girl in the classroom the majority are boys in the class so she was really
excited and I just think that they just immediate had this immediate connection
and just loved each other from the get-go who's your best friend here tell
me about Avery she's doing nice to me you have a husband Avery yeah why do you
hold Avery's hand
I just hold her hand she wakes it Avery what's your favorite thing about
Ruby she wants to sit by me BAM hi my name is aimy aanenson and I have the
pleasure to be Ruby's speech and language pathologist shine out sing me
you make me happy when skies are a strong voice when Ruby came here she had
a difficult time answering questions within an average length of time so we
wanted to shorten that up so she could have conversation with others so she
works a lot on questions and answering right away and also engaging with others
when do you need to wear a seatbelt
well but what does a phone do and when did you buy easily Ruby has a strong
desire to learn and a strong desire to connect with others and I think that's
the most important thing
they ready for this one short your hair is not short you're correct so what is
your hair is your hair it is long can you try saying the L a little better
long yes hey ya her language has taken off as far as interacting with others
and connecting with others and responding within a reasonable amount of
time and so she enjoys that connection and so her language has taken off which
is thrilling to see I'll see you later all right let's go bye bud we need you
to play the quiet game in speech today did you answer right away yeah I loved
it I loved it that's a good deal who do you think our
guests speak readers sons oh well you don't know me booth I answered some
Christians and speech do you have fun doing it yeah
there's no ot so today I'm going to be reading the book have you filled a
bucket to day your bucket has one purpose only its purpose is to hold your
good thoughts and good feelings about yourself you feel very happy and good
when your bucket yes fall I feel so good when she gets on that bus because it's
every second up her day is gonna be amazing from the minute she gets on the
bus her bus driver is awesome to the person who takes her off the bus is
awesome she goes to class and she has an amazing day there the bus driver has
pockets too you could invite the new kid at school to play with you that would be
a good way to fill somebody's bucket and you feel very sad and lonely when your
bucket is empty you I don't want I don't want enough to be about you you
wanna pull bucket laughs not get feelings mom you but just knowing that
she's surrounded by people who care about her and really want to take care
of her needs it it frees me up to be able to do what I need to do during the
day and not worry about her at all all day long we are either filling up or
dipping into each other's buckets by what we say and by what the words from
side to side let's go to the rack believe in who you are Davi
do not going spend the other way let's bend the other way I think
Ruby can teach the world to be kind I don't think I've ever seen Ruby at she
doesn't have a mean bone in her body I think just she kind of leads by example
and and kindness just kind of exudes her news article a baby oh you just
build her bucket how do you feel then you feel good I know cuz you felt
somebody's bucket how about you oh how do you feel about that he's so excited
about everything we talked about and she wants to carry over those skills and do
it and I think that makes her proud that she's able to do those things
independently too and that's what we're trying to teach her is to you know carry
over those skills outside of the classroom and to be independent all
right Avery do you want to feel Ruby's talking
so happy yeah she said you're funny he's not happy every speaker felt me
John did your wife in the under hallways yeah yeah what is that that's my boy yes
for you mom and dad I love you thank you for
caring for me thank you for getting me to school chocolates you're carryin
words will fill their buckets right up
every a new best friend oh she's quite a ways behind us she's my
best friend I know but she's behind it's all kinda
gonna slow down and wait for it what is this place
this is connect right now so we gather together and our primary focuses that we
make connections with our kids so this particular group is my responsibility
just to make sure that their experience your it's love and everything that they
wanted to be so what are we gonna do take you on a culinary plan to come up
sing our song choose singers on after we finish eating our treats we have a few
rules with Ruby so the first one is always eat with a napkin the next one is
to never talk to her when she's eating or drinking oh yeah we have a lot of
words you can't say Ruby is such an amazing student she's such an
inspiration to all of us and I'm sure you can tell that just by the attraction
of kids to her when she comes in she lights up the room with her excitement
she loves to be included in everything that we do one two three
I'm an aunt Ivan is I have a cat I'm a cow Moo Moo I'm a dog I'm a dog
he's your Indian result
I always say that I'm probably learning more from Ruby than she is for me if so
I would assume that would be the same with the student helpers one it just
maybe changes their perspective of life and maybe makes them thankful for you
know what they have Ruby is a student in the class she sings with the soprano
section and she has two seventh-grade friends that sit with her and help her
with what's going on they help her when she comes to the concerts especially for
walking in on the risers and help her to walk to that spot and the same in the
classroom Ruby sings um and she loves music she gets very excited about it and
she participates very well she does a lot of listening and picks up the words
and lyrics that way
I think Ruby really teaches people that it's okay to be different you don't have
to be perfect in whatever society deems is perfection to be loved
one of Ruby's friends told me that they loved having Ruby around because when
she's around there was no drama and in thirteen-year-old girls there is plenty
of drama but Ruby can't participate in that drama and so having her there kind
of helps cancel that out for them
Ruby who are you standing beside what's your favorite thing about her wow it's
too loud when it's not too loud what's your favorite pair that's aw they have
really come together around Ruby really ad they have their own little name that
they made up with a combination of all their names
and it starts with Ruby um and they just love her so much
they lunch together every day they hang out on the weekends
and before you know it Avery was going to lunch with Ruby and
the girls embraced Avery and now they all eat lunch together
last summer her friends were sad they were worried that they might not get to
have lunch with Ruby and so they each wrote a letter to the principal and
asked him if they could be in the same homeroom which meant that they would be
in the same lunch and the principal honored their request and so those four
girls are all in the same homeroom and lunch together this year
they even have like a chain a text chain that they have which I am on and is like
her proxy you know but she her iPad some days I'll go in and she'll be hanging
out on her iPad and she'll have like 15 messages on her iPad
so we'll sit down and not lead them to her and let her know that our friends
were taxiing heard what do they write they'll talk about what they don't think
they want to do just general chat
your mouse over here took weight and right here just like you wanted and
they're really a good group of girls they're sweet and they understand Ruby
they understand her limitations but also encourage her like I do to be as much as
she can be they're just kids what do you and your friends talk about at lunch
Debbie think cutie Ruby she could say wall she's a cutie
Ruby so Ruby is in an adaptive fayed class and there are also gen ed peers
along with her in that class that help out
I've been having
happen
started turning turning
every you did to people they play softball they play kickball they do all
the all the same skills that are done in a regular Fayed class just with a little
bit more support it's really hard for me to know exactly what she can see because
she doesn't really know how to describe things for me in a way that I would
understand but what I've noticed is that she can see light she can see like
shadows vision does vary a day to day so like she's having a really good day it
seems like her vision is better if she's kind of having the tired day it's almost
like she runs into things more often she just can't describe what she can see and
what she can't enough to do like a vision test of any real accuracy
he loves everybody for who they are and I think having a friend like that gives
people just such a sense of hope and belonging that they might not have in
their other friendships
I'm not personal
what's the biggest thing you hope Ruby gets out of her education gosh I think I
want her to learn functional skills that she can use going forward in her life
and I also want her to have a lot of fun I think learning should be interesting
and really exciting and I think that's what is happening here movie you ready
to go home she talks to sell all the time even when they're not in the same
room sometimes when they're not in the same location it's tough when Ruby gets
home from the school all she wants to do is just chill out on the couch and use
Stella as a pillow luckily Stella's usually pretty patient
but she's getting older and sometimes she moves doesn't she
what do you think Stella was thinking about what's it like to see the lessons
she learns that school resonate at home
you say that I love to see the thing she's learning at school it just means
that it's really sinking in Riley and Ruby have been friends since they were
in third grade so it's been about four year four to five years now where are
you sitting with Lenny
Riley tell me a little bit about Ruby oh she's probably the nicest person that
you'll ever meet and she has the kindest heart ever and
she'd never do anything or say anything mean to anyone so sometimes after school
Riley comes over and hangs out with Ruby and they will bake together they'll do
work boxes together sometimes Ruby even goes over the air after school
why did you decide to be friends with Riley I made cookies but now why we're
friends cause we make cookies yeah yeah
and how more happy okay oh he's feeling me don't you're with her just no matter
how bad your day is going or how bad something might seem she can just like
brighten your day whenever you're with him he's gonna see me how to do it she's
taught me that you need to accept everyone for who they are and everyone's
different and unique in their own way and that everyone just like deserves a
chance and everyone kind of wants to just be friends with everybody else
and you should let them be so at the end of the night when Ruby's ready to just
relax and unwind she gets free time it's Ruby time and so I set her up with her
iPads send her off to her bedroom and like any 13 year old she is content in
there relaxing and watching it for hours
oh are you tired yeah okay we get it all did we get him off yeah do they feel
clean yeah all right what is Stella she's probably nan the coach well she's
taking it to Estella should we say it when we get in bed yeah yeah I'm good
should we go get in bed I do feel like repeat was put on this earth to send a
message of hope to people and to show people that love really does conquer all
you know Ruby is pure love and acceptance and she gets that in return
from everyone she interacts with and so I just hope that when people see that
her life is pretty typical they they know that she's all good like her life
isn't worse than anybody else's it's it's a pretty amazing life that she has
you have a best friend easily okay okay here's the bucket you're gonna have to
find what's hidden in there get those hands way up there we go okay you say
good night you know did Stella came off she thinks that Stella says goodnight to
her every night but really it's one of me either my boyfriend or I making a
Wolf's advocate
oh yeah good