Name: ひどくなってきた（自己免疫アップデート (i'm getting worse (autoimmune update))
Uploaded: 2021-01-14T08:48:45.000Z
Duration: 8 min 21 s
Description: VoiceTubeの動画で発音を聞きながら英語表現を覚えよう！学べる英語：

現在進行形

動名詞

About eight months ago, I got diagnosed with ankylosing spondylitis,

But in reality, it's something that I've been dealing with for over ten years.

The short of it is that I have bone growing where bone shouldn't be.

If left untreated, I would just become one giant stiff bone body man.

It's an inflammatory disease that causes me a great deal of pain and, often, keeps me from sleeping at night.

Not sleeping leaves me fatigued and in just this constant fog.

Symptoms get worse any time I'm immobile for a long period of time.

I'm living with a baseline of pain every single day,

to the point that I forget what it's like to not hurt... somewhere.

Eight months ago, I got language to explain the chronic pain that I had been feeling.

But this video is not about my diagnosis.

It's about everything that's happened since.

So I started my medication and for a few months,

I was able to sleep throughout the night without waking up in pain.

I wasn't stiff throughout the day, my body felt safe.

During this time I was instructed to keep up with physical activity,

I figured you know, I don't hurt every day anymore,

so maybe it's okay if I missed exercising this week to stay late and edit or you know,

it's okay if I spend the whole weekend on the couch being a lazy sack of sh*t cause that's what normal people do.

Like with any invisible illness, I look okay-

at least I think, I think, I think I look okay.

But it's a bizarre experience because it's it's just that. It's invisible.

You feel like you're deteriorating on the inside, but you have nothing on the outside to prove it.

I started waking up again in the middle of the night.

At first confused, and then as the weeks went by, a nagging discomfort, then a pain.

I was back to where I was eight months ago.

but still with all that evidence screaming in my face,

I was back to the same old bullshit of not accepting my own reality.

the truth is I started ignoring my disease the second I could,

the moment that my medicine started working.

I stopped paying attention to it. I stopped researching it.

because the more that I would learn, the more I would have to accept that this is now a part of me.

Yesterday, I had the worst flare-up I've ever had in my life.

My neck felt swollen. I had a horrible headache, my body hurt.

Cassie Mobis peas, Keith's Eggo waffles, and real ice.

[Keith] Do you feel like it's worse than yesterday?

This whole week I haven't been able to sleep.

I'm afraid that I'm just gonna keep getting worse.

It's so easy to normalize the pain and just think like yeah, this is,

finally ready to accept and confront my symptoms,

and ready to attack this sickness head-on,

the medicine is still working, which meant that I'm okay.

After my first video on A.S, I got a ton of incredible emails,

some people who found out that they also had A.S,

or some who just discovered they had a different autoimmune disease,

others who just had that something in their lives that they had been ignoring for far too long and decided,

Your emails made me realize that if I'm gonna talk the talk, I gotta walk the walk,

I decided to make my health a full-time job.

Yoga and stretching, first thing when I wake up, and last thing before I go to bed.

Long walks with Bowie every single day instead of letting someone else walk him for me.

And exercise, especially on the days that I don't want to.

Accepting that, sometimes, being late to work in the morning is a necessary component to my health.

Realizing that I need to push things to make room for physical activity in my life.

Learning to close the laptop at the end of the day, get off my ass, and go outside.

Experimenting with autoimmune diets and natural sleep aids.

字幕リスト動画再生

ひどくなってきた（自己免疫アップデート (i'm getting worse (autoimmune update))

chronic

fatigue

incredible

prioritize