Name: エレン、ALSと闘う意欲的な消防士の帰還を歓迎 (Ellen Welcomes Back Motivational Firefighter Battling ALS)
Uploaded: 2021-01-14T08:53:20.000Z
Duration: 8 min 37 s
Description: VoiceTubeの動画で発音を聞きながら英語表現を覚えよう！学べる英語：

過去形

Earlier this season, we met an incredible couple dealing

Eric is a firefighter for the city of Los Angeles.

This past summer he married his college sweetheart Amanda.

they received the news that at age 29, Eric had ALS.

It still doesn't feel real when you're there

and they're telling you like this is what you have.

It doesn't seem fair or real or anything like this.

It's proving just once again that you are remaining,

From Costa Mesa, California, please welcome back

But I feel very fortunate that I could still walk and still have

my voice and extremely grateful to be sitting here

Yeah, well, since you've been here, I think--

I mean, that was our whole point is to help spread the word,

What's happened since you've been on the show?

We just want to bring more awareness to this disease

and really tell people what ALS patients are going through.

And we explained to them what Eric's going through

and what all these 30,000 Americans are going through

and how we can create some type of legislation

to really allow patients access to treatments to help

And from what I heard, they seemed almost shocked.

They weren't really aware of this, right?

Yeah, not many people are aware that there

is for the first time ever promising treatment for ALS.

But it's stuck in the FDA trials, and those really long

And it could take up to 10 to 12 years for a treatment

When you're diagnosed with ALS, you get a two-to-five year

And pyrolysis comes a lot sooner than that.

I mean, that must be so frustrating to have

been diagnosed with this disease knowing that there's

cured, possible cure, or at least something that can help

and keep spreading our word and our story.

Yeah, because this has changed your lives, obviously,

You have something that you thought you would never

do to go speak to congressmen and senators

and fight for something, which obviously you're going to do.

His brothers were actually just in Washington D.C. again

to just continue to talk with these congressmen and senators

and try to really create a different pathway for ALS

So we're trying to do everything we can by telling them that.

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エレン、ALSと闘う意欲的な消防士の帰還を歓迎 (Ellen Welcomes Back Motivational Firefighter Battling ALS)

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