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  • Hey there and welcome to Life Noggin It's a beautiful butterfly, and now it's a

  • dragon!?

  • Wow!

  • The human body is pretty resistant.

  • Not only is it pretty good at growing, but if you get a cut, a bruise, or even break

  • a bone, your body usually has a way of repairing itself.

  • But sometimes, the same mechanisms that keep you healthy can mutate and cause your body

  • to grow and develop more or less than it would normally.

  • Imagine that one day, you find a huge lump on your ribcage, and, even after getting it

  • x-rayed, you still don't know what's going on.

  • Eventually you find out that you have a rare genetic disorder where your body becomes more

  • and more immobile due to a dehabillitaing amount of bone growth, to the point where

  • you relish the escape of video games since it's one of the only activities where you

  • don't feel left out.

  • Well that's the life of Daniel Williams, an 11-year old boy living in Houston, Texas.

  • And all of this is happening because Daniel has what's known asstone man syndrome”.

  • Stone man syndrome, also known more officially as FOP, is a disorder where tissue from your

  • muscles, tendons, and ligaments are gradually replaced by bone.

  • This causes bone to form outside of your skeleton, which can begin to limit how much you can

  • move around.

  • Generally, people with FOP begin to notice it when they're kids, with symptoms starting

  • in their neck and shoulders, and then moving down their body and into their limbs.

  • For Daniel and other people with FOP, safety is a big deal.

  • That's because physical trauma, even things that would otherwise be beneficial like surgically

  • removing the bone growth, can cause their FOP to flare up.

  • While there is still no cure, scientists /have/ tracked the cause for FOP back to a mutation

  • in a specific gene in your DNA.

  • So maybe with more research, there's hope for a cure in the future!

  • Now, FOP is pretty rare, but it isn't the only condition that causes excessive growth

  • in your body.

  • There's also neurofibromatosis, or Nf, which has three different types, but is generally

  • a genetic disorder that mainly affects nerve cell tissues.

  • It can cause tumors to grow on your nerves, which may be benign, but can also be dangerous

  • as they compress your nerves and other tissues.

  • Sometimes the tumors are even cancerous.

  • There's no cure for Nf, but treatments can help to control the symptoms.

  • Unlike with FOP, sometimes it's recommended to remove any harmful growths through surgery.

  • Radiation therapy is also sometimes an option.

  • Another condition along the lines of abnormal bodily growth is epidermodysplasia verruciformis,

  • or EV, more commonly thought of astree man syndrome”.

  • In this extremely rare skin disease, wart-like lesions begin to cover your body, resembling

  • tree bark.

  • The growths can be limited to a small cluster of only a few warts, or expand to the point

  • where they cover a large part of your body.

  • There's currently no cure.

  • You can remove the warts surgically, though it may only be a temporary solution, as they

  • can sometimes come back.

  • Any of these conditions can certainly affect the quality of your life.

  • Hopefully one day we can find a cure for all of them, or at least find more effective ways

  • to treat their symptoms.

  • Are there any other conditions you want us to talk about?

  • Let me know in the comment section below!

  • Did you know that it's possible for your hand to have a mind of it's own!?

  • Curious to find out more?

  • Check out this video!

  • Sometimes the hand will do the opposite of what you want it to do, like closing the fridge

  • door after you just opened it, or trying to take off your clothes after you just put them

  • on.

  • As always, my name is Blocko, this has been Life Noggin, don't forget to keep on thinking!

Hey there and welcome to Life Noggin It's a beautiful butterfly, and now it's a

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この稀な症候群は、本質的にあなたを石に変えてしまう (This Rare Syndrome Essentially Turns You To Stone)

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    April Lu に公開 2021 年 01 月 14 日
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