Name: この稀な症候群は、本質的にあなたを石に変えてしまう (This Rare Syndrome Essentially Turns You To Stone)
Uploaded: 2021-01-14T07:54:41.000Z
Duration: 3 min 29 s
Description: VoiceTubeの動画で発音を聞きながら英語表現を覚えよう！学べる英語：

Hey there and welcome to Life Noggin It's a beautiful butterfly, and now it's a

Not only is it pretty good at growing, but if you get a cut, a bruise, or even break

a bone, your body usually has a way of repairing itself.

But sometimes, the same mechanisms that keep you healthy can mutate and cause your body

to grow and develop more or less than it would normally.

Imagine that one day, you find a huge lump on your ribcage, and, even after getting it

x-rayed, you still don't know what's going on.

Eventually you find out that you have a rare genetic disorder where your body becomes more

and more immobile due to a dehabillitaing amount of bone growth, to the point where

you relish the escape of video games since it's one of the only activities where you

Well that's the life of Daniel Williams, an 11-year old boy living in Houston, Texas.

And all of this is happening because Daniel has what's known as “stone man syndrome”.

Stone man syndrome, also known more officially as FOP, is a disorder where tissue from your

muscles, tendons, and ligaments are gradually replaced by bone.

This causes bone to form outside of your skeleton, which can begin to limit how much you can

Generally, people with FOP begin to notice it when they're kids, with symptoms starting

in their neck and shoulders, and then moving down their body and into their limbs.

For Daniel and other people with FOP, safety is a big deal.

That's because physical trauma, even things that would otherwise be beneficial like surgically

removing the bone growth, can cause their FOP to flare up.

While there is still no cure, scientists /have/ tracked the cause for FOP back to a mutation

So maybe with more research, there's hope for a cure in the future!

Now, FOP is pretty rare, but it isn't the only condition that causes excessive growth

There's also neurofibromatosis, or Nf, which has three different types, but is generally

a genetic disorder that mainly affects nerve cell tissues.

It can cause tumors to grow on your nerves, which may be benign, but can also be dangerous

as they compress your nerves and other tissues.

There's no cure for Nf, but treatments can help to control the symptoms.

Unlike with FOP, sometimes it's recommended to remove any harmful growths through surgery.

Radiation therapy is also sometimes an option.

Another condition along the lines of abnormal bodily growth is epidermodysplasia verruciformis,

or EV, more commonly thought of as “tree man syndrome”.

In this extremely rare skin disease, wart-like lesions begin to cover your body, resembling

The growths can be limited to a small cluster of only a few warts, or expand to the point

where they cover a large part of your body.

You can remove the warts surgically, though it may only be a temporary solution, as they

Any of these conditions can certainly affect the quality of your life.

Hopefully one day we can find a cure for all of them, or at least find more effective ways

Are there any other conditions you want us to talk about?

Let me know in the comment section below!

Did you know that it's possible for your hand to have a mind of it's own!?

Sometimes the hand will do the opposite of what you want it to do, like closing the fridge

door after you just opened it, or trying to take off your clothes after you just put them

As always, my name is Blocko, this has been Life Noggin, don't forget to keep on thinking!

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この稀な症候群は、本質的にあなたを石に変えてしまう (This Rare Syndrome Essentially Turns You To Stone)

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