Name: MEの何が悪いの？[CC] (What's wrong with ME? [CC])
Uploaded: 2021-01-14T10:17:21.000Z
Duration: 19 min 55 s
Description: VoiceTubeの動画で発音を聞きながら英語表現を覚えよう！学べる英語：

様態の副詞

Today we’re going to be discussing just exactly what is wrong with ME…

Like... myalgic encephalomyelitis. It’s a- It’s-

Subscribe for more terrible medical jokes! Actually, that’s probably the last one.

But genuinely do subscribe. And then click the bell notification because that’s ACTUALLY

the subscribe button now because YouTube likes to keep us all on our toes.

I could work on my ballroom dancing. [crickets fx]

myalgic encephalomyelitis, or ‘ME’ as it is commonly known-

Which is so unfortunate. I remember first being diagnosed and telling people and my

friends making the same ‘it’s all me, me, me with you!’ joke over and over and

Wow, you’re so funny(!) And also I’m dying inside as you’re making fun of my illness.

ANYWAY. ME is a chronic (meaning long-term) neurological condition that affects many different

systems in the body but most generally the nervous and immune systems. It’s commonly

characterised by pain, fatigue and post-exertional malaise-

Meaning you body struggles or fails to recover after expending even small amounts of energy.

It’s a really complex condition because everyone who experiences it has a different

pattern of illness and a different trigger that sets it off. Plus symptoms and severity

can fluctuate and change over time. ME affects an estimated 250,000 people in the UK, and

That’s a lot of people! And yet it’s a really misunderstood illness. I’ve previously

made a video about chronic fatigue, which I’m going to add to the cards above and

put a link to in the description. And although there are many similarities and differences,

I talked about this in the chronic fatigue video but I was diagnosed with ME when I was

17 because I had all of the usual symptoms associated with it BUT it’s now thought

According to my current doctors: ME is something that

starts after an inciting incident in a body that was previously healthy. Chronic Fatigue

is a symptom of a range of disorders and conditions and thus occurs in people with poor health

Can people with a different health condition get ME? I have yet to find a doctor who will

give me a definitive answer. Or do anything other than stare blankly at me. But props

to anyone who can answer that in the comments. And also: probably.

Oh there are so many fun ‘No one knows’ when it comes to ME….

At the time of my diagnosis, they asked when I had last been ‘healthy’ and ‘had energy’

and I was like “pretty sure I used to flop down on the floor in exhaustion as a toddler”

and they said “we’ll write that you got ME at 8 years old” and I said “no, nothing

happened when I was 8” and they said “it was definitely when you were 8” and I said…

I do have some very similar features: even some seemingly very simple physical or mental

activities (or combination of activities), can leave me... debilitated. In bed, unable

to properly put thoughts together… be coherent…

It’s quite difficult to explain, I think, unless you’ve experienced it yourself but…

imagine the drunkest you’ve ever been (or if you’ve never been drunk, I’m sure you

can use your imagination) and you’re holding two positive magnets together and you just

want to clip them together but… they just… won’t… go… together…

That’s me trying to put two  thoughts together when tired.

You know that moment when a name is just on the tip of your tongue? It’s- it’s that

actress- you know, the- she was in the- with the- the- oh I’ll remember it later!

It can impact me straight away or might take a day or two to kick in. Most often I find

it’s the day after the day after I do a big thing that it really kicks in.

[clap] So fun on Sunday! Two days after moving house...

Throughout this video I’m probably going to use ‘ME’ and ‘Chronic Fatigue Syndrome’

as is if they’re interchangeable because… no one has told me they aren’t.

The British NHS and the American Healthcare system use different terms as does probably

every other country in the world because no one knows what the hell M.E. really is.

The one thing that M.E. ISN’T is ‘just being tired’ and while I’m about to give

you a list of symptoms that DO fall under the M.E. heading, it’s important to remember

that not everyone will experience the same symptoms and as such, it's important not to

compare someone who has M.E. to another person who has the illness.

People with M.E. can vary enormously in their experience of the illness. For example:

Charlie can go to school for an hour a day but then has to rest.

Mary can go to school for one day a week but then has to rest.

Charlie was very severely affected at first but has been getting better ever since.

Mary fluctuates between mild to moderate severity without an upwards gradient.

The illness isn’t characterised by the pattern of experience: some people will get better

as if they were never ill in the first place, some people will find that whilst they don’t

completely recover they are able to go on to live happy, fulfilling lives… and, yes…

there are some people for whom M.E. is- and I think it’s completely justified to use

People have died from M.E., regardless of how marginalised it is by broader medical

establishments, people have died from it. And that shouldn’t be ignored.

Feeling generally unwell- flu like symptoms, that nasty chill that covers your body and

makes you feel like you’re purely tender flesh from under a scab that has been picked

This may include a recurrent sore throat and possibly swollen glands.

Pain in your joints or muscles. Nerve pains as if you have pins and needles all over or

a swarm of tiny spiders perpetually sneaking over your flesh.

cramp and your guts will hurt along with your chest, like your ribcage is a vice.

Headaches and migraines are, of course, a major factor, especially in relation to light

and sound. You may become photosensitive or have hyperacusis, where light or sound becomes

字幕リスト動画再生

MEの何が悪いの？[CC] (What's wrong with ME? [CC])

cognitive

chronic

fatigue

struggle