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  • Hello lovely people,

  • I hope youre having a delightful day and are, you know

  • upright.

  • If youre new here and wondering why there is a weirdly-1950s redhead girl lying on the

  • floor: hi, I’m Jessica and I have PoTS.

  • What on earth is that and how can you tell if you have it?

  • Well keep watching to find out!

  • PoTS symptoms can be frightening and uncomfortable so I wanted to make something to calmly discuss

  • symptoms you may not even realise mean something and hopefully make you feel better.

  • In this video I’ll be giving you a brief idea of the condition,

  • [ironically] Thanks Tilly!

  • In this video I’ll be giving you a brief idea of the condition, how it affects people,

  • signs that you might have it and where to go to get diagnosed.

  • If youre completely new to this topic, I suggest watching my earlier video, which

  • I’m going to link in the description as well as in a card above.

  • If you enjoy lighthearted and amusing videos with an educational slant then make sure youre

  • subscribed!

  • And remember to click the bell icon as that’s the best way to be notified of new content.

  • Much love to my notifications squad, I see you!

  • So, as I mentioned, about a year ago I made a video explaining what Postural Orthostatic

  • Tachycardia Syndrome is in detail and since then one of the most frequent questions I’ve

  • been asked is: “how do I know if I have it”...?

  • To which able bodied people may respond:

  • Of course you know if you have it!”

  • [blows raspberries]

  • God I wish bodies worked that way!

  • Unfortunately sometimes it can be hard to judge these thingsand that can be very

  • upsetting.

  • So whilst I can’t reply to every individual message and email about PoTS, I hope this

  • video can be of some comfort to you.

  • - youre don’t great darling, don’t worry.

  • Even more confusing is that each case of PoTS is different.

  • You can develop PoTS suddenly or it can come on gradually over time.

  • Sometimes it can develop suddenly after a viral illness or traumatic event, or during

  • or after pregnancy.

  • In many cases, the cause of the problem with the nervous system in people with PoTS is

  • unknown.

  • - not helpful

  • The most common age range for PoTS is 13-50 and it occurs predominantly in women with

  • 5 women for every 1 man being affected.

  • Teenagers who develop PoTS often find that it gradually disappears a few years later.

  • So yay!- I told you it’s going to be okay

  • Although if you develop it as a result of a separate condition that’s obviously going

  • to be a different story.

  • It’s commonly found in association with:

  • Poisoning!

  • Either through alcohol or certain metals.

  • Or inheriting a faulty gene that causes too much of the "fight or flight" hormone noradrenaline

  • to be produced

  • Joint hypermobility syndrome-

  • - hi, that’s me.

  • - an inherited condition that results in unusually flexible joints and abnormally elastic blood

  • vessels.

  • Other underlying conditions such as diabetes, amyloidosis, sarcoidosis, lupus, Sjogren’s

  • syndrome or cancer.

  • Aren't you just impressed I said that?

  • And our old friend Chronic Fatigue Syndrome.

  • If you have one of these things, then yes, this video is indeed the place for you.

  • But even if you don’t you may still have PoTS.

  • Postural orthostatic tachycardia syndrome is a condition that affects the blood flow

  • in your body.

  • People who have it note that our circulatory systems go wild at the merest invitation,

  • particularly when standing or sitting up (that’s what orthostatic means)

  • Primary symptoms of an orthostatic intolerance are lightheadedness, fainting, and an uncomfortable,

  • rapid increase in heartbeat.

  • I spent years trying to explain to various doctors that I could FEEL my heart beating

  • too fast and that it was sometimes so bad and painful I felt like I was about to have

  • a heart attackto which I was told that all people sometimes suddenly become aware

  • of their heart beating but that it was normal and I was making too much of a big deal about it.

  • As if I somehow couldn’t tell my heart was faster then than at other times.

  • It’s MY heart.

  • It’s… in MY body.

  • I think I know what it feels like.

  • By why does it happen?

  • Well, normally when you sit up or stand, gravity pulls some of your blood down to your belly

  • area, hands and feet.

  • In response, your blood vessels quickly narrow and your heart rate increases slightly to

  • maintain blood flow to the heart and brain, and prevent your blood pressure dropping.

  • Amazingly, this is all done without needing to think about it by the autonomic nervous

  • systemthe nervous system in charge of automatic body functions.

  • It’s the same thing that keeps you breathing without you having to consciously thinkbreathe

  • every two seconds and then stops you from dying when you get really engrossed in the

  • Sims and forget.

  • When you have PoTS, the autonomic nervous system has affectively just been given the

  • latest Sims 4 Expansion Pack and has better things to do with its time.

  • There's a drop in blood supply to the heart and brain when you become upright and the

  • heart races to compensate for this.

  • For me though, POTs isn’t just about the motion of standing and the change in state.

  • It also hits me as a decrease in blood pressure over time.

  • So I’m fine for a little bit but then slowly feel the blood just draining away from my

  • head and ooohhh

  • yepthere’s my face on the floor.

  • There are actually various forms of POTS so if you don’t have all of the signs I’m

  • about to list, that doesn’t mean you 100% don’t have it, you may just have a type

  • that doesn’t involve that and please remember that all cases are different.

  • I think it would be really helpful if people who have already been diagnosed list some

  • of their symptoms in the comments along with the ones they DON’T have.

  • It’s so important to me that our little community is able to come together, support

  • each other, make people feel less alone

  • Now, signs of PoTs:

  • [holding a pot] Well that’s a sign right there!

  • [giggles]

  • I’m so sorry I couldn’t resist that terrible joke.

  • I’m ashamed of me too.

  • 1.

  • The most common andobvioussymptom is dizziness, light-headedness or near fainting

  • when standing up.

  • But it can also occur with prolonged sitting and, as I said earlier, for me there is that

  • relation with just standing up for a long time.

  • 2.

  • Approximately 30% of people with PoTS experience fainting or blackouts, also known assyncope’.

  • I have a wonderful habit of picking things up from the floor, standing and then just

  • -whoomp- backwards we go!

  • 3.

  • Palpitations.

  • The sensation of your heart...

  • [monster foot steps] Hi Tills!

  • The sensation of your heart pounding in your chest.

  • And no, it doesn’t feel likejust noticing your heart pumpingit feels likeoh

  • my god I’m going to pass out and die if my heart doesn’t calm the hell down’!

  • I’m also going to throw chest pain in here.

  • 4.

  • Approximately two thirds of those with PoTS have orthostatic headaches which means they

  • occur as a result of being upright and may be caused by reduced blood supply to the brain.

  • Most people with PoTS also have migraine type headaches.

  • [ironically] Yay!

  • You may also be like me and have such low blood pressure that your blood doesn’t go

  • anywhere unless you keep hydrated to a ridiculous degree.

  • People often comment:

  • oh you have such good skinto which I say, “Yes, I drink 8 litres

  • of water a day, dirt doesn’t have a chance, it’s just blasted out of my pores!”

  • - I don’t know how skincare works butyep, sounds about right.

  • 5.

  • Tiredness and weakness are both common symptoms although theyre terribly hard to quantify!

  • I feel theyre both things that only you yourself can knowit just isn’t possible

  • to grasp how it feels from the outside.

  • 6.

  • Brain Fog!

  • I have a whole video about brain fog that explains what it is so click the link in the

  • card above to watch that, but in brief: it’s when your brain feels so clouded you can’t

  • properly bring thoughts together.

  • 7.

  • Shakiness.

  • But not just any shakiness

  • You know when you catch a bug or have a horrific hangover…?

  • That split second before you vomit, when you feel vulnerable like your whole body is an

  • open scab and you know you have absolutely no control over what is about to happen?

  • That’s the shakiness I’m talking aboutexcept it lasts a lot longer!

  • 8.

  • If you find yourself getting short of breath after just standing up or exerting yourself

  • slightlythis may be you.

  • If you know the feeling of your lips turning bluethis is probably you.

  • 9.

  • Digestive problems.

  • Nausea is common.

  • Other symptoms include diarrhoea, constipation, bloating, abdominal pain and vomiting.

  • Many people with PoTS are told that they have irritable bowel syndrome.

  • 10.

  • Excessive glare, blurred or tunnel vision.

  • You may also know well something called the black curtain.

  • That’s when youre in the process of fainting or about to and a dark curtain descends over

  • your eyes.

  • You may notice that feeling hot, eating, strenuous exercise and periods make symptoms much worse.

  • Personally, I’m slayed monthly by my period.

  • It’s… ruddy awful.

  • and unnecessary.

  • If these all sound like you then yes, you may have PoTS but don’t worry, in many cases

  • it can be treated through either diet, medication and a little gentle exercise-

  • Cut out sugar NOW.

  • You will feel much better once your body adjusts to life without sugar.

  • Of course, if there is an underlying cause to your PoTS finding and treating this may

  • also lead to symptoms subsiding.

  • AND as I mentioned at the start, for many people the condition merely goes away!

  • Hello.

  • A quick side note before we talk about steps to get diagnosed:

  • Are you just part of this now?

  • You may be thinking

  • gosh, Jessicathat list of symptoms sounds a lot like the symptoms

  • of this other medical problem that I have.

  • To which I can only say: same.

  • It can be very confusing when PoTS is a symptom of a condition you already have or else you

  • have a number of overlapping conditions.

  • How do you isolate which symptoms fall under the PoTS heading?

  • PoTS is classified as secondary if you have a condition that already affects your blood

  • pressure, blood volume or blood sugar.

  • For instance: diabetes, gastrointestinal disorders that are associated with low fluid intake

  • due to nausea or fluid loss through diarrhea and a range of autoimmune diseases.

  • Prolonged bed-rest or deconditioning can set off PoTS.

  • PoTS can also co-occur in all types of Ehlers-Danlos Syndrome, which is a hereditary connective

  • tissue disorder marked by loose hypermobile joints prone to subluxations and dislocations.

  • Let’s move on to the steps to get diagnosed:

  • Firstly, see your GP or primary care physician if you think you have PoTS but bear in mind

  • that they might not know what it actually is so it’s wise to print out a list of symptoms

  • from an official government site.

  • NHS England has a great one.

  • Pretty sure it still applies in other countries because that's how bodies work

  • It can be misdiagnosed as anxiety or panic attacks so make sure to be clear about your

  • mental state at the time when asked- particularly if you have PoTS like symptoms when feeling

  • a variety of ways but doing the same physical thing.

  • I once stood up and fainted just as a teacher happened to mention homework

  • -not that I even heard her

  • and boy was it

  • harder to then get help at school for anything except counsellingwhich I really didn’t need

  • Once youve talked to your GP they will likely refer you onwards to a specialist who

  • can run you through a series of tests.

  • Some of them weird.

  • A diagnosis of PoTS is made if your heart rate increases by over 30 beats per minute

  • after 10 minutes of standing or if it increases to more than 120 beats per minute.

  • I would advise getting hold of a fitbit or similar so you can check your own heart rate

  • before going to your GP as that’s just another piece of the puzzle to help an onwards referral.

  • You should then have a range of tests to confirm a diagnosis and rule out other conditions,

  • These include:

  • A tilt table test where your heart rate and blood pressure are measured while lying on

  • a bed, and the bed is then tilted into a more upright position.

  • OR the active stand test when your heart rate and blood pressure are measured after lying

  • down, immediately upon standing, and after 2, 5 and 10 minutes

  • A test of your heart's electrical activity, called an electrocardiogram or ECG.

  • Or finally a 24-hour ambulatory blood pressure and heart rate monitoring.

  • This is when the hospital gives you a small device attached to your belt that takes regular

  • readings while you're doing normal activities.

  • Again though, you could just get a FitBit...

  • I feel like that would save the hospital money too

  • Remember, no matter where you are on your journey to get diagnosed, you are valid and

  • you are not alone.

  • I hope this video has been able to help in some way and that if youre new here youll

  • consider sticking around.

  • Please share this video with anyone you feel could benefit, even the ablebodied people

  • in your life who aren’t entirely sure what this PoTS thing is.

  • I’ll see you in my next video

  • [kiss]

Hello lovely people,

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過ごす時間が長すぎる......?[CC] (Spending too much time on the floor...? [CC])

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    林宜悉 に公開 2021 年 01 月 14 日
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