字幕表 動画を再生する
-
Earlier this season, we met an incredible couple dealing
-
with an unimaginable situation.
-
Take a look.
-
Eric is a firefighter for the city of Los Angeles.
-
This past summer he married his college sweetheart Amanda.
-
And just one month after the wedding
-
they received the news that at age 29, Eric had ALS.
-
I started googling.
-
I just kept checking all these boxes.
-
I'm like, man, this is crazy.
-
ALS keeps popping up.
-
It still doesn't feel real when you're there
-
and they're telling you like this is what you have.
-
And he's 29, healthy.
-
We just got married.
-
It doesn't seem fair or real or anything like this.
-
It's just-- I don't even have words.
-
I'm just-- I'm so sorry.
-
And so I called your fire station.
-
So they're here.
-
Come on out.
-
[CHEERING]
-
It's proving just once again that you are remaining,
-
the strongest guy in the room.
-
I love you.
-
From Costa Mesa, California, please welcome back
-
Eric and Amanda Stevens.
-
It's good to see you again.
-
It's great to see you.
-
Thank you for being back.
-
How are you feeling, Eric?
-
I'm feeling good.
-
I'm definitely progressing.
-
But I feel very fortunate that I could still walk and still have
-
my voice and extremely grateful to be sitting here
-
and share what we have been up to.
-
Yeah, well, since you've been here, I think--
-
I mean, that was our whole point is to help spread the word,
-
get the word out there.
-
What's happened since you've been on the show?
-
So since we've been on this show,
-
we've been advocating like crazy.
-
We just want to bring more awareness to this disease
-
and really tell people what ALS patients are going through.
-
And we traveled to Washington D.C.
-
and met with congressmen and senators.
-
And we explained to them what Eric's going through
-
and what all these 30,000 Americans are going through
-
and how we can create some type of legislation
-
to really allow patients access to treatments to help
-
them fight for their lives.
-
And from what I heard, they seemed almost shocked.
-
They weren't really aware of this, right?
-
Yeah, not many people are aware that there
-
is for the first time ever promising treatment for ALS.
-
But it's stuck in the FDA trials, and those really long
-
trials and long process.
-
And it could take up to 10 to 12 years for a treatment
-
to be approved.
-
And we don't have the time.
-
When you're diagnosed with ALS, you get a two-to-five year
-
diagnosis.
-
And pyrolysis comes a lot sooner than that.
-
Right, right.
-
So what can we do?
-
I mean, that must be so frustrating to have
-
been diagnosed with this disease knowing that there's
-
cured, possible cure, or at least something that can help
-
you prevent-- slow it down.
-
And yet, it's just stuck someplace.
-
What can we do?
-
I think having us back on this show,
-
I mean, the first time we were on here,
-
we just had tremendous response.
-
And that in fact was real.
-
We had some amazing following.
-
And being able to spread awareness
-
and keep spreading our word and our story.
-
I mean, this platform is just amazing.
-
So--
-
Yeah, because this has changed your lives, obviously,
-
in many, many ways.
-
But you're going to Washington.
-
You're advocating for this.
-
You have something that you thought you would never
-
do to go speak to congressmen and senators
-
and fight for something, which obviously you're going to do.
-
But how is the family taking this?
-
They've been extremely supportive.
-
His brothers were actually just in Washington D.C. again
-
to just continue to talk with these congressmen and senators
-
and try to really create a different pathway for ALS
-
treatments because like Eric explained,
-
he doesn't have years.
-
They don't have years to wait.
-
They need something now to help them.
-
And it's there.
-
So we're trying to do everything we can by telling them that.
-
And they're really willing to help.
-
Yeah.
-
Yeah, my brothers have just been incredible.
-
And really our whole family has just been so supportive.
-
And they feel the frustration that we feel.
-
They're doing everything they can to use their voice
-
and just somehow try to fix this broken system.
-
Well, we will do everything we can do.
-
And I told you that the last time you were on.
-
I just want to keep having you on
-
and keep doing everything we can.
-
We're going to take a break and we'll be back.
-
More with Amanda and Eric after this.
-
We're back with my friends, Eric and Amanda Stevens.
-
And you just gave a TED Talk, which I mean,
-
for somebody, some people, they speak publicly for a living.
-
And that's what they do.
-
But for someone who's never done that before,
-
I would think a TED Talk would be something
-
that you'd be like--
-
public speaking is one of the scariest things for anyone.
-
How did you feel?
-
Yeah, it was extremely terrifying.
-
I keep telling Eric he's the only person I would ever
-
do that for because it was definitely the hardest
-
thing I've done in my life.
-
But I think it's also an amazing opportunity
-
to just share our story.
-
And so we're just fighting like crazy for that.
-
And we're going to keep fighting like crazy.
-
And we're going to keep raising awareness and doing everything
-
we can to because it's crazy that there are treatments
-
sitting there that need to be--
-
speed them up.
-
And you must be--
-
I mean, you started feeling these things right
-
before you got married, but didn't
-
want to say anything because you didn't want to make anybody
-
worry about anything.
-
And then you're newly married.
-
And you must be so grateful for Amanda.
-
Yeah, words can't express how thankful I am.
-
And she's an absolute rock star.
-
She's just taken the bull by the horns
-
and is really just a rock.
-
And I don't know what I'd do without her.
-
Well, you got her.
-
And you got all of us.
-
You got me because I am now going
-
to be your advocate for this.
-
[APPLAUSE]
-
You hear people say you got to live your life
-
every single day like it's your last day.
-
And we all just take things for granted.
-
But with this diagnosis, it's been six months?
-
Yeah.
-
Something like that.
-
I mean, what is--
-
how has your perspective on life changed?
-
Yeah, I mean, like you said, you try to live every day you can
-
the best you can.
-
Until you're struck with something like this,
-
you really realize what that means.
-
And you just take it one day at a time.
-
And today's my best day.
-
I get to sit here with my wife, and I get to sit here with you.
-
And we get to have a conversation.
-
And you hold on to that.
-
And I just feel super fortunate to still have that
-
because not everyone does.
-
Yep, one of the things you were going to do before all of this.
-
And you've had to give up your jobs
-
because you're taking care of each other.
-
But you wanted to buy a home.
-
And my friends at Shutterfly said, what can we do
-
to help because we love them?
-
And I said, well, I love them, too.
-
And they said, what can we do to help?
-
And I said maybe if you give them
-
$100,000 for a payment for a home.
-
And they said, OK.
-
[APPLAUSE]
-
Oh my gosh.
-
Thank you so much.
-
Thank you so much.
-
You're welcome.
-
Go to our website to find out how you can help Amanda
-
and Eric fight against ALS.
-
We'll be right back.