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I was born in 1947, a long time ago,
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and when I was 18 months old, I had polio.
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I was in an iron lung for three months
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and in and out of the hospital for three years.
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Now, we had lots of neighbors in our Brooklyn neighborhood,
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and some of them were really very helpful for my parents.
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Some of them were really afraid of contagion,
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and they wouldn't even walk in front of our house.
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They would literally walk across the street.
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I think this was a time when my family really began to realize
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what disability meant to some people:
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fear.
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And it wasn't even a sure thing that I would live at home,
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although I didn't learn about this until I was 36 years old.
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I was having a discussion with my father one night,
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and he said, "You know, when you were two years old,
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one of the doctors suggested to your mom and I
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that you live in an institution,
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that they could just go ahead with their lives
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and raise their kids
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and kind of be done with having to deal with all the disability-related things.
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I didn't believe my father, not because he was a liar,
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but I'd never heard this story,
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and my mother in fact validated that.
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She never wanted to tell me.
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But in reality, I don't know why I was really surprised by this story,
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because when I was five years old,
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and my mother, like mothers and fathers all across the United States,
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was taking me to school to enroll,
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she pushed my wheelchair to the school in walking distance to our house,
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pulled the wheelchair up the steps into the school,
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and we were greeted by the principal.
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Not really greeted.
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But the principal said, no, I couldn't come to that school
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because it wasn't accessible.
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But he told us not to worry,
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because the Board of Education in fact would send a teacher to my house.
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And they did
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for a total of two and a half hours
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a week.
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(Audience murmurs)
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But for good behavior,
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they threw in an occupational therapist
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who taught me that very essential skill
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of cross-stitching.
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(Laughter)
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I don't cross-stitch today.
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(Laughter)
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I didn't actually get to go to school in a real building
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until I was nine years old,
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and then I was in classes only with disabled children
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in a school that had mainly nondisabled children.
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And in my classes,
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there were students up to the age of 21.
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And then, after 21,
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they went to something called sheltered workshops
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with menial work
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and earning either nothing or below minimum wage.
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So I understood discrimination.
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My parents understood discrimination.
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My parents came from Germany.
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They were German Jews who left in the 1930s,
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escaping the Holocaust.
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My parents lost family and they lost parents.
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Both my parents lost their parents in the Holocaust.
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And so they realized
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that they could not be silent
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as things were going wrong for me in my life.
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Not me personally,
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but what was going on around me.
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They learned that because I used a wheelchair,
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none of the high schools in New York City, in the entire city,
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were wheelchair accessible,
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so what was supposed to happen
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is I was supposed to go back onto home instruction
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along with many other students.
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So my parents banded together with other parents.
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They went to the Board of Education
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and they demanded that the Board of Ed make some of the high schools accessible.
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And they did.
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And so I and many others
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were finally able to go to high school, a regular high school,
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and take regular classes.
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So what happened next?
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I was learning more and more about what discrimination was,
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and equally important, I was learning that I needed to become my own advocate.
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I was entering college, Long Island University,
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and I had always wanted to be a teacher,
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and so I minored in education and I took all the appropriate courses,
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and then when it was time for me to go for my license,
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I had to take a written exam,
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an oral exam
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and a medical exam.
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At that time, all three of those exams
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were given in completely inaccessible buildings,
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so I had friends who carried me up and down the steps
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for these exams,
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not in a motorized wheelchair.
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(Laughter)
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In a manual wheelchair.
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But I passed my oral exam.
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I passed my written exam.
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My medical exam was something completely different.
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One of the first questions the doctor asked me
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was, could I please show her how I went to the bathroom.
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I was 22 years old
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and you know when you go for any kind of an interview,
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you think about all the kinds of questions that people could ask you?
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(Laughter)
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That was not one of them.
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And I was freaked out in the first place
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because I had heard
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that there were actually no disabled people using wheelchairs
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who were teachers in New York,
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so each step along the way I was expecting something bad.
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So I said to her,
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is it a requirement that teachers show their students
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how to go to the bathroom?
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If it is, I can do that.
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So no surprise,
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I was failed
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because I didn't pass the medical.
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The official reason that I was denied my job
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was paralysis of poliomyelitis sequelae of -- I'm sorry.
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Paralysis of both lower limbs, sequelae of poliomyelitis.
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Honestly, I didn't know what the word "sequelae" meant,
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so I went to the dictionary, and it meant "because of."
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So I'd been denied my license because I couldn't walk.
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So what was I going to do?
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This is a really important time in my life,
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because it would be the first time
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that I really would be challenging the system, me,
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and although I was working with a lot of other friends who had disabilities
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who were encouraging me to move forward with this,
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it was nonetheless quite frightening.
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But I was really very lucky.
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I had a friend who was a disabled student at Long Island University
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and was also a stringer at the "New York Times,"
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and he was able to get a reporter
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to write a really good piece about what had happened
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and why he thought what had happened was wrong.
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The next day there was an editorial in the "New York Times"
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with the title of "Heumann v. The Board of Education"
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and the "New York Times" came out in support
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of my getting my teaching license.
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(Applause)
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And then the same day,
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I got a call from an attorney who was writing a book about civil rights.
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And he was calling me to interview me,
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and I was interviewing him.
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He didn't know that.
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And at the end of our discussion, I said,
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"Would you be willing to represent me? I want to sue the Board of Education."
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And he said yes.
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Now, sometimes I say that the stars were aligned around this court case,
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because we had an amazing judge:
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the first African American female federal judge --
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(Laughter)
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Constance Baker Motley.
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(Applause)
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And she knew discrimination when she saw it.
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(Laughter)
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So she strongly encouraged the Board of Ed
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to give me another medical exam,
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which they did.
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And then I got my license,
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and while it took a number of months
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for me to actually get a principal to offer me a job,
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I finally did get a job and I started teaching that fall
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in the same school that I had gone to,
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second grade.
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So --
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(Applause)
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That's a whole other TED Talk.
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(Laughter)
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But I was learning as my friends were,
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and people I didn't know around the country,
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that we had to be our own advocates,
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that we needed to fight back people's view
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that if you had a disability, you needed to be cured,
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that equality was not part of the equation.
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And we were learning from the Civil Rights Movement
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and from the Women's Rights Movement.
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We were learning from them about their activism
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and their ability to come together,
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not only to discuss problems
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but to discuss solutions.
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And what was born is what we call today the Disability Rights Movement.
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So I'd like to tell you a couple of riddles.
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How many people do you think it takes
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to stop traffic on Madison Avenue
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during rush hour in New York City?
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Do you have a guess? How many?
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(Audience members shout out answers)
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Fifty.
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One would be too little.
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Fifty people.
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And there were no accessible paddy wagons,
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so they had to just kind of deal with us.
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(Laughter)
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(Applause)
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But let me tell you another riddle.
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How many people does it take to stop a bus in New York City
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when they refuse to let you on because you're in a wheelchair?
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One. That is the right answer.
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So what you have to do though
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is take your wheelchair --
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(Laughter)
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Sidle in the right place right in front of the steps
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and give it a little push underneath,
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and then their bus can't move.
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(Laughter)
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Any of you who want to learn how to do that,
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talk to me after this.
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(Laughter)
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In 1972, President Nixon vetoed the Rehabilitation Act.
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We protested. He signed it.
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Then the regulations that needed to be promulgated to implement that law
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had not in fact been signed.
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We demonstrated. They were signed.
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And when the Americans With Disabilities Act, the ADA,
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our Emancipation Proclamation Act,
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looked as though it might not in fact be passed in the House or Senate,
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disabled people from all across the United States came together
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and they crawled up the Capitol steps.
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That was an amazing day,
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and the House and Senate passed the ADA.
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And then President Bush signed the ADA.
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It's a great picture.
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President Bush signed the ADA on the lawn of the White House.
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It was an amazing day,
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and there are about 2,000 people there.
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It was July 26, 1990.
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And one of the most famous statements he had in his speech
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was, "Let the shameful walls of exclusion finally come tumbling down."
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For any of you in the room
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who are 50 or older, or maybe or even 40 or older,
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you remember a time when there were no ramps on the streets,
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when buses were not accessible,
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when trains were not accessible,
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where there were no wheelchair-accessible bathrooms in shopping malls,
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where you certainly did not have a sign language interpreter,
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or captioning, or braille or other kinds of supports.
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These things have changed,
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and they have inspired the world.
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And disabled people around the world want laws like we have,
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and they want those laws enforced.
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And so what we've seen is something called
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the Convention on the Rights of Persons with Disabilities.
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It is a treaty that was adopted in 2006.
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It's celebrating is 10-year anniversary.
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More than 165 countries have joined this treaty.