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Hello lovely people,
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This video is sponsored by Surfshark, who are letting me panic but also helping to keep
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me calm with many episodes of Grey's Anatomy.
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As you know, I like to keep this channel as a little ray of positivity
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- and polite sarcasm
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In a cloudy internet world. As an eternal optimist
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- I promise, life is actually pretty cool!
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Not sarcasm.
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Please subscribe.
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I like to see the silver lining in everything, even though I live with chronic illness and
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disabilities. And I want to share that with you, making you smile and feel bright. But
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sometimes the best way to make you feel better, is just to share that
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I'm also… panicking.
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- Huh. That coronavirus, hey(?) Really keeping us on our toes (!)
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We've been told since the beginning of the pandemic that COVID-19 mainly affects the
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elderly and people with underlying health conditions, those deemed to be 'vulnerable
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people' will be receiving the most help when socially isolating, or 'shielding',
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but… what does that actually mean? Who is vulnerable? And what if, like me, you're
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vulnerable but not 'vulnerable' in the right way?
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Panic buying of food in the UK began long before we were on lockdown and to start with
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it was actually pretty amusing: photos circulated on Twitter of supermarkets looking perfectly
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normal bar the toilet paper aisle with their shelves bizarrely devoid of even a single
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sheet. We left laughing emojis on videos of people attempting to steer their trolly around
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corners as it overflowed 228 rolls of toilet paper-
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- “don't they know that this is a respiratory virus, NOT one that makes you go to the loo?”
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Well the joke's on us now we're in isolation without toilet paper, isn't it?
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But then it all started to get a bit more serious and suddenly we were walking around
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supermarkets with completely empty shelves and panicking that, oh, actually, maybe this
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is something we should genuinely worry about…
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And all of the slots for online delivery were gone.
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And all of the supermarkets were barely restocking in time.
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And then the government advised that those with ill health should stay in their houses
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for 12 weeks.
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And now here we are.
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Sitting in my house.
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Nearing the end of week 2.
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Quietly panicking about food.
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Because the British government have identified 1.5 million people who they class as being
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'vulnerable' and who should be 'shielding' by avoiding the outside world and thus will
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be receiving food parcels and extra help. This includes organ transplant recipients,
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people with specific cancers, severe respiratory conditions,
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rare diseases and those on immunosuppression
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therapies. And if you're on that list and haven't yet received a text or a letter
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from the government then please contact your GP IMMEDIATELY. Those in the vulnerable group
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should not attend gatherings of any kind and should not leave the house for any reason,
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including to buy food.
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I have wasted intercostal muscles, I've previously had pneumonia and bronchitis
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a number of times
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and I have an autoimmune disease-
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- you know that time I thought that I didn't actually have Mixed Connective Tissue Disease
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because I've now been diagnosed with Ehlers Danlos Syndrome? Nope. According to my doctor
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I have both. Fun (!) Moving on...
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Despite that my conditions are not listed on the government's vulnerable list…
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Now, don't get me wrong, I do NOT want to be sicker than I am, BUT there are a lot of
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disabled and chronically ill people who are falling into a grey area of being vulnerable
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but not vulnerable in the right way.
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Think about it: yes, a person with severe respiratory issues cannot leave the house
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because they would be more susceptible to catching COVID-19 but what about someone who
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lives alone, uses a wheelchair and doesn't have any accessible shops in their area…?
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Both of these people need online deliveries but only one can access the government's
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database for vulnerable people.
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Last week I slowly started to get more and more freaked out as our food supplies ran
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low. I checked through every single supermarket delivery system. I sat in a four hour online
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queue just to log in to my normal grocery delivery service only to be told that there
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were no slots available for the next two weeks and no more orders would be taken.
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Other supermarkets said they would only be delivering to those on the 'vulnerable'
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list provided to them by the government or to older people (lord knows how they were
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planning on working out ages from email addresses…)
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- insert 'hotmail' joke here.
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Yes, this is exactly what you're subscribing for.
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I tried to sign up for the Government's 'vulnerable people' database but I don't
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fit into their very narrow classification even though my GP told me on no uncertain
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terms to put myself at risk or leave the house.
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I realise it sounds like I'm whining but that's just because I'm smiling. What
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I'm actually doing is panicking and crying on the inside.
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I'm currently doing weekly livestreams on Sundays whilst stuck in isolation for 12 weeks
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(thanks so much, faulty immune system) and I mentioned in the latest one that I've
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become OBSESSED with Grey's Anatomy during this trying time. Why, you may ask?
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Excellent question.
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For some reason, my inner panic about world wide medical anxiety is quieted by watching
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the over-the-top medical dramas of Seattle Grace Hospital where apparently every single
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person with every single incredibly rare disorder or accident HAS TO GO to be saved by one of
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just eight people, despite being in a hospital of hundreds, who all sleep with each other
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and also discuss said sex during surgery which, by the way, is the only time they tie their
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hair up!
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Basically, every time I watch it with Claudia, who has a medical background and job
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she feels the need to say:
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- “non regulation hair and earings!”
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To the extent that I now want to reach into the screen with a hair tie!
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I can't tell you why watching fake medical drama soothes real medical drama but it actually
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works and I'm much calmer now. Except I live in the UK, which means that I only have
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access to the latest season AND THAT'S JUST NOT OKAY!
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- but don't panic, I've found the solution thanks to today's sponsor, Surfshark.
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Genuinely, thank you Surfshark, you have helped to calm my soul.
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Surfshark is a VPN app and browser extension that allows you to access the internet safely
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AND without barriers. A Virtual Private Network encrypts your data when you log on to public
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wifi, meaning that hackers can't gain access. It also hides your IP meaning you can set
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your location to anywhere in the world and thus watch videos that are available in those
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countries but aren't in yours… like Grey's Anatomy season 15.
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- I'm feeling very zen right now.
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You'll also be able to unblock some great content that's here on YouTube, like clips
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from American late night shows or things from the BBC here in the UK. I'm particularly
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fond of Surfshark's VPN because it's the only one that lets you use one account across
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unlimited devices. Meaning I can watch Grey's Anatomy on my phone, my ipad, my laptop AND
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my desktop!
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- Have I talked about Grey's Anatomy enough? It also has LESBIANS.
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But this is not an advert for Grey's Anatomy because as fun as it is being able to access
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content you can't normally see thanks to Surfshark, the most important factor is safety.
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A VPN adds an extra layer of security when you're online to keep all of your passwords,
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photos and videos safe. You might think it's hilarious sending ugly up-the-nose shots of
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your fifteen chins to the private group chat but you'll think it's less hilarious when
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a random stranger uses your wifi to steal it from you...
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It's not just malicious data stealing that you'll be protected from, Surfshark will
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also defend you from tracking, surveillance and commercial targeting! No malware, no phishing,
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no insecurity when you're online banking, lots of Grey's Anatomy.
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- other TV shows are available.
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In fact, with a VPN, they're all available! Simply change your location and you'll be
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amazed at all of the great things available on your streaming service that you never had
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access to before!
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Just click the link in the description of this video and use code JESSICA for 83% off
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plus one extra month for free! AND Surfshark offers a 30-day money-back guarantee so there's
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really no harm in trying it...
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Surfshark does not monitor, track or store what you do online, it's just a safety net
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that lets you surf the web in peace. And watch until the end of Grey's Anatomy.
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- Oh god, please tell me what to watch when I get to the end of Grey's Anatomy…
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Because this 'calm panic' is not very fun...
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Imposter Syndrome with regards to illness is very real and probably a much larger topic
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for another day. As it relates to the coronavirus though… It's seen me swinging between panic
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with the pain and fear of having my lungs feel with gunk coming back to haunt me…
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and then yelling at myself because I'm not still as ill as I was then so I need to pull
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myself together… guilt for even feeling scared in the first place when there are others
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so much worse than me… then realising that yes, if I did get the virus, I likely would
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not do very well and I DO NOT want to end up back in hospital… but I won't, right?
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But… I will?
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And yes, perhaps I'm aiming all of that fear onto food and wanting to control something
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that, much like my own health, I have just the slimmest margin of control over. But…
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that's all I can do.
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Sainsbury's were willing to create their own list of vulnerable and elderly people
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but they only have a phone line (which isn't super accessible but sure(!)) and they've
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received a year's worth of calls in two weeks. There are 10 million people aged over
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70 in the UK. Can they handle putting them all on the list? And I know, I know that it
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is so much worse for people in other countries, that I'm utterly and completely blessed
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to have the NHS but the truth is that living without some kind of official, accepted cover
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has left me feeling…
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vulnerable.
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- Is anyone else sick of the word 'vulnerable' yet?
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I'm used to being called a 'vulnerable adult' although that's generally by social
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workers and thanks to my cognitive problems…
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- I'm a bit of a liability.
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I know, surprising, isn't it? I can sit here talking in a video and sound very 'with
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it' but if you send me into a shopping centre for food you'll find me three hours later
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turning in circles and clutching a slipper.
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Disability benefits in the UK come in two parts (there is supposedly a new system based
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on overall points, which is dumb because you could score really highly on one axis but
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not on another but never mind.... high rare care, high rate mobility. You can be on the
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highest for both but still not be eligible for the 'vulnerable' status that gives
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you access to food...
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And look, I already HAVE a diagnosis and support in place. I'm already registered as disabled
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so should the government open up their idea of what qualifies as 'vulnerable' to ALL
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disabled people then I'll be fine… but what about people who aren't there yet?
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There are many, many people who are in the process of being diagnosed, people who are
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waiting for their benefits to come through, going through the welfare system, waiting
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for a certificate that registers them as legally blind or in need...
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In the end, last week, when we couldn't get any food delivered, we bit the bullet
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and sent my wife out to the local supermarket for food. It's a small little local supermarket,
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not in the city, so she queued for only an hour outside as they were letting just a limited
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number of people into the shop at one time.
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When she came home she washed her hands and changed her clothes and unpacked but… she
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still left the house. She still came into contact with people in close quarters… and
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She still picked things up from a shelf that someone else may have touched
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and put back and
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doesn't that completely negate the idea of isolating ourselves? I know some families
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are keeping their distance even from each other but how would that work when I physically
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need her help?
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There are a large number of disabled and elderly people who are in a far worse situation than
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me, who rely on carers who come in daily and don't live with them, which increases their
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chance of infection massively as these people are going in and out. My carer, Clara, doesn't
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have a car so has to take the bus to my house and wow buses are pretty gross at the best
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of times…
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She's been using a lot of her working hours searching for food recently because, oh I
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forgot to add, I also have to follow a special medical diet that means I rely on fresh food
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and can't just eat tins of beans or dried lentils or other things that make me bleed
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internally because the hospital is not where I want to be right now.
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I wish I had an answer to this problem, that this video had a message and a solution, but
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it doesn't because I don't.
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And that's okay. These are just my feelings. This is just my hand held out to you.
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Am I allowed to be afraid? Yes. Are you? Yes.
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We're all allowed to feel our feelings, no matter what they might be. No matter if
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we're scared that they're not valid or know that there are others who have it worse
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or a thousand people on social media who seem like they're coping so much better because
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they can make jokes and laugh at this big scary, invisible monster that we're all
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facing.
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But that's the key: we're all facing it.
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And it's scarier for some than it is for others, granted. And some of us are stronger
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than others and can fight a virus off. But it's still a big unknown that has the power
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to draw us together. Because we can all get through this if we work together. If we stay
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inside, follow the rules of social distancing, help those who are in need, spot who in our
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communities may need the most help, and then volunteer whatever effort we can give.
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We've gone through these things before, and we'll go through them again,
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and we can do this.
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Stay safe, stay calm and I'll see you in my next video.